What's the word?
By: Nicole K.
A vast vocabulary has always been one of my strongest tools. As I grew up, my vocabulary has changed, as anyone does. I learned new words like “autoimmune disease”, “Crohn's Disease” and "Stoma Swimwear."Â
I was diagnosed with it when I was 14 years old. Before then, I was assumed to be a liar. A typical high school freshman trying to evade class and work. But my mom kept going to bat for me because she knew staying at home all week was making me miserable.
I quickly learned about ignorance and mistrust, so many missed prognosis and doctors that dismissed my pain. I learned words like Remicade, a medication that reduces the effects of a substance in the body that can cause inflammation.Â
Fast forward to 2015, I discover some new words: “right hemicolectomy” and “fistula.” All of a sudden, I need an emergency surgery to remove over a foot of my bowels. Two years later, in 2017, I understood the meaning of loss. Loss of self, body, lover, job and confidence. They say nobody likes you when you’re 23. Well 23 did not like me!
In March 28, 2018, my internal dictionary grew into a whole new series: “The Ostomy Diaries.” As someone unresponsive to Crohn’s Disease medication, I was recommended to get an ostomy and so I did. Words like: wafer, flange, coupling, bag and pouch, are part of my day-to-day life. I also got a deeper understanding of survival. Although the medical community doesn’t like to use the word “promise,” they did use it many times with me. “We PROMISE you Nicole you will be able to get out of the house,” they said. “We PROMISE you will be able to get a job,” they said. Over a year after getting my ostomy and that has yet to be the case.Â
The ostomy helps me divert my bowel movements pass the places that were badly damaged by ulcers. But now, I pass a mucus created by my colon, which the doctors said it wouldn’t be a big deal, but it is. Now I don’t have as many bowel movements, but I go sometimes 50 times a day to the toilet because of the mucus. I now struggle to maintain whatever weight I gain.Â
Doctors suggested that I should get a permanent ostomy, which would mean removing my colon and thus having less mucus to pass. That would be good, except that it wouldn’t mean that my Crohn’s would just magically disappear. Crohn’s Disease can affect anything between the mouth and the anus, the entire digestive system.Â
And yet during my doctor visits, my doctor always assumes I am doing better. My problem is that at first glance I am never taken seriously. That has nothing to do with me being pretty or young, it has everything to do with the fact that doctors should never assume that because you look good that MUST mean you are feeling good.Â
Since last January, I have been on disability. I am aware of how lucky I am that my claims were processed so quickly. From May to September of this year I was able to stay away from the hospital, not because I was feeling better but because I grinned and beared it. In August I met someone, he pursued me and he was actually interested in me. Yet I was not aware he had a pill problem and later would find out he stole 30 of my Dilaudid pills, an opioid six times stronger than morphine. My dad, like the angel he is, was able to work with the police and the pharmacy to replace the pills I so desperately needed.
I have my scars from multiple abdominal surgeries and now an ostomy, and I’m a hot girl. Despite my scars and drain, my confidence flows freely as my health does. The two are directly tied, and that’s what truly is saving me. I have joined the Girls with Guts community and attended their retreat back in June. I felt empowered in their company and I am steadfast in my commitment to helping others that have gone through the same as me. I now have the November retreat to look forward to and will continue to be engaged with this community, as I have learned this is the only way to cope with the pain and isolation of Crohn’s Disease.Â
Comments
GREAT ILLUMINATI TEMPLE Of MONEY AND POWER,
JOIN THE ILLUMINATI : huntersalvinsolution@yahoo.com OR huntersalvinsolution@gmail.com …. YOU CAN USE ANY OF THE EMAILS TO CONTACT HIM OR YOU CAN ALSO CALL / ADD HIM UP ON WHATSAPP USING THIS MOBILE NUMBER:+2347059232579
Are you a business man or woman, political, musician, student,
the you want to be rich, famous, powerful in life, join the Illuminati brotherhood cult today and get instant rich sum of. 1million dollars
in a week, and a free home. any where you choose to live in this world and also get 10,000,000 U.S dollars monthly as a salary…
A Cash Reward of USD $1,000,000.00 USD
A New Sleek Dream CAR valued at USD $300,000 USD
A Dream House bought in the country of your own choice
One Month holiday (fully paid) to your dream tourist destination.
One year Golf Membership package
A V.I.P treatment in all Airports in the World
A total Lifestyle change
Access to Bohemian Grove
Monthly payment of $1,000,000 USD into your bank account every month as a member
One Month booked Appointment with Top 5 world Leaders and Top 5 Celebrities in the World.
If you are interested e-mail info to: huntersalvinsolution@yahoo.com OR huntersalvinsolution@gmail.com …. YOU CAN USE ANY OF THE EMAILS TO CONTACT HIM OR YOU CAN ALSO CALL / ADD HIM UP ON WHATSAPP USING THIS MOBILE NUMBER: 2347059232579 for immediately initiation.New members registration is now open online…YOU CAN ALSO CALL / ADD HIM UP ON WHATSAPP USING THIS MOBILE NUMBER:2347059232579
I was been suffering hard Shipley from HIV / AIDS since 6 years now, and i happen to have 2 kids for my husband, and now we cannot proceed to have another kids all because of my disease and now i have to do all what a human like i and my husband can do just to get my disease healed, i have went to several places to seek for help not even one person could ever help, until i melt a comment on the daily news paper that was commented by Ms Tracey about how this powerful traditional doctor help her get cured of the disease (HIV- AIDS) “my fellow beloved” i firstly taught having a help from a spiritual traditional healer was a wrong idea, but i think of these, will i continue to stress on these disease all day when i have someone to help me save my life? "so i gather all my faiths and put in all interest to contact him through his Email address ( huntersalvinsolution@yahoo.com OR huntersalvinsolution@gmail.com …. YOU CAN USE ANY OF THE EMAILS… ) so after i have mailed him of helping me to cured my disease, he respond to me fast as possible that i should not be afraid, that he is a truthful and powerful doctor which i firstly claimed him to be. So after all set has been done, he promise me that i will be healed but on a condition that i provide him some items and obeyed all he said. I did all by accepting his oracle fact and only to see that the following week DR HUNTERS ALVIN mailed me on my mail box that my work is successfully done, he sent me the medicine through UPS SPEED POST. I took the medicine as prescribed by him and 14 days later he ask for medical test i was first shocked and later arise to be the happiest woman on earth after i have concluded my final test in the hospital by my doctor that i am now HIV-Negative. My papers for check are with me and now i am happy and glad for his miraculous help and power. With these i must to everyone who might seek for any help, either for HIV cure or much more to contact him now at this Email:( huntersalvinsolution@yahoo.com OR huntersalvinsolution@gmail.com …. YOU CAN USE ANY OF THE EMAILS… ) "sir thank you so much for your immediate cure of my disease, i must say for curing my disease, i owe you in return. Thanks and be blessed sir .CONTACT HIM NOW: huntersalvinsolution@yahoo.com OR huntersalvinsolution@gmail.com …. YOU CAN USE ANY OF THE EMAILS……………..YOU CAN ALSO ADD HIM UP ON WHATSAPP USING THIS MOBILE NUMBER:+2347059232579
HOW I GET FREE FROM HERPES AFTER 8 DAYS
My name is Paulson Hooker,i am from USA.I want to share my testimony on how i get cure of my HERPES GENITAL with the help of Doctor HUNTERS ALVIN, I have being suffering for this disease for a very long time now and I have try several means to get rid of it, but there was no solution to it because my doctor told me at the hospital that herpes has no cure.I have being scam by several people on internet who claim that they have herpes cure.but I never gave up, until I saw a post,posted by JACK WILSON. when I saw her testimony I was happy because she make a statement that the herbal doctor medicine is for free. after reading the testimony,so I collect the herbal doctor email and mail him about my herpes that I need cure and 4 hours later he replied my mail, and told me to send him my details about my self and after that he told me that his herbal medicine is free and that the only thing that I need to do, is to provide money that he will use in getting the herbal medicine preparation done and I told him that he should give me 2/3 days to get the money amd we keep on sending mail to each other and using phone calls to communicate and three days later I got the money that he request for in getting the items and I send it to him he email me that he has purchase the items that he is about to prepare the herbal medicine and after the preparation he send the herbal medicine to me via fedex and he also give me the guide line on how to use the herbal medicine and after using it for 8 days as he told me, then I went for medical checkup at the hospital and I was so surprise that the doctor congratulate me that am now herpes negative and I was so happy because at last am free from herpes and also I want to thank WILSON for using doctor HUNTERS ALVIN to cure my herpes and another testimony is that two of my friend who also have herpes that contacted doctor HUNTERS ALVIN for their own cure have also been cured from herpes and now they are also herpes NEGATIVE like me and if you have herpes or any other disease and you want to get rid of it, DR HUNTERS ALVIN is the best DR to cure it. If you want to be sharing the same testimony that am sharing with other who has being cure by him kindly contact doctor HUNTERS ALVIN via this email: huntersalvinsolution@yahoo.com OR huntersalvinsolution@gmail.com …. YOU CAN USE ANY OF THE EMAILS… …. DR HUNTERS GOT ALL CURE AND REMEDY TO ALL KIND OF SICKNESS YOU MIGHT HAVE BEEN SUFFER FROM AND ALSO SPECIALISES IN THE FOLLOWING:
(1) If you want your ex-back.
(2) If you always have bad dreams.
(3) You want to be promoted in your office.
(4) You want women/men to run after you.
(5) If you want a child.
(6) You want to be rich.
(7) You want to tie your husband/wife to be yours forever.
(8) If you need financial assistance.
(9) Herbal care
(10) if you are unable to satisfy your wife sex desire due to low err action.
(11) If your menstruation refuse to come out the day it suppose or over flows.
(12) If your work refuse to pay you, people owing you.
(13) Solve a land issue and get it back.
(14) Did your family Denny you of your right?
(15) Do you have a low sperm count?
(16) Are you contesting for any political position in your country?
(17) Case solves E.T.C
You are free to contact him at ( huntersalvinsolution@yahoo.com OR huntersalvinsolution@gmail.com …. YOU CAN USE ANY OF THE EMAILS… ) ….. CONTACT HIM NOW FOR ALL ANSWERS TO ANY KIND OF PROBLEMS: huntersalvinsolution@yahoo.com OR huntersalvinsolution@gmail.com …. YOU CAN USE ANY OF THE EMAILS……YOU CAN ALSO ADD HIM UP ON WHATSAPP USING THIS MOBILE NUMBER:+2347059232579