SCT and Body Image

By: Emily Cieplik

A lot of people label me as “disabled” before they even get to know me. I’m not saying it’s bad, it’s an observation, but at the same time these people also see me as disabled and nothing else. They also seem to have this preconceived notion that because I am physically disabled, that I’m also intellectually disabled. I’ll never understand it. 

I have Sacrococcygeal Teratoma (SCT). An SCT is a tumor of the tailbone. SCT is a part of my identity because so much of my life revolves around it. Because of the location of my tumor, it affected the size and function of my right kidney and the development of the joints in my right leg. I had multiple surgeries within the first month of my life, two of which I can actually remember. Because my right leg was affected more, it grew slower so for the majority of my growth, my legs were different lengths. Eventually, I had to have a surgery to stop the growth of my left leg and my right leg stopped shortly afterwards. I also later developed hip dysplasia and had surgery to fix that. Between the numerous doctors’ appointments and the way it limits my mobility, there really is no escaping it. At the same time, I use my experience with SCT to relate to others in ways that my friends wouldn’t be able to.

Sometimes if I don’t tell people right away that I have a disability, they act like I lied to them, and quickly ghost me. I get that it may be a lot to deal with, but this is my normal and I have never known anything different. Obviously normal is on a spectrum, but for example most people have two feet that are the same size. A disfigurement isn’t always a negative thing though, it could be as simple as a scar left over from a surgery or missing a finger or toe. 

 

Emily ridding horse

 

It was just rough growing up with my disability. I didn’t feel like I had anyone I could talk to. When I did talk to people, it was never brought up like having a disability could be a body image issue and then with everyone saying I was an inspiration to them, it made me feel as if how I was feeling was wrong. Growing up I never saw anyone like me in the media and if I did, they were normally painted in a negative light or as needing saving, like Quasimodo in The Hunchback of Notre Dame.

When you grow up disabled you know you’re different and then one day it just kind of hits you that it’s not an “acceptable” difference. I think I came to this realization in first grade; I was a very lonely first grader. It really was cemented in 4th grade when I was used as the “cute disabled friend who I help to make myself feel better,” but the moment I asked for more, like "let’s play at recess" I was met with a “why would I do that?” It’s not cute and quirky. In high school I also developed extremely restrictive eating habits. I remember learning about eating disorders in seventh grade and wondering how it happens to people. I, sadly, do not feel comfortable talking about it now. It’s not as bad as it used to be, but I do still struggle with it. 

I originally started riding as an addition to physical therapy. Riding not only helped strengthen my legs a bit but it also helped with my independence as well. I loved to jump with my horse. It was fun to see how high I could jump before it got too intimidating. I use my experience with SCT to relate to others in ways that my friends wouldn’t be able to. For example, my friends have learned what I can and cannot do. Like, if we do an activity, I'm going to need to bring my wheelchair and there is not even a second where it’s a problem. 

Comments

  • Posted by شركة نقل عفش بمكة on

    https://jumperads.com/transfer-furniture-hafr-albatin.html نقل عفش بحفر الباطن
    https://jumperads.com/price-transfer-furniture-mecca.html اسعار شركات نقل العفش بمكة
    https://jumperads.com/transfer-furniture-mecca-2017.html نقل اثاث بمكة 2017
    https://jumperads.com/how-transfer-furniture-mecca.html كيفية نقل العفش بمكة
    https://jumperads.com/all-company-transfer-furniture-mecca.html اهم شركات نقل العفش بمكة
    https://jumperads.com/best-company-transfer-furniture-mecca.html افضل شركة نقل عفش بمكة
    https://jumperads.com/price-transfer-furniture-jeddah.html اسعار شركات نقل العفش بجدة
    https://jumperads.com/transfer-furniture-jeddah-2017.html نقل اثاث بجدة 2017
    https://jumperads.com/how-transfer-furniture-jeddah.html كيفية نقل العفش بجدة
    https://jumperads.com/all-company-transfer-furniture-jeddah.html اهم شركات نقل العفش بجدة
    https://jumperads.com/best-company-transfer-furniture-jeddah.html افضل شركة نقل عفش بجدة
    https://jumperads.com/price-transfer-furniture-yanbu.html اسعار شركات نقل العفش بينبع
    https://jumperads.com/transfer-furniture-yanbu-2017.html نقل اثاث بينبع 2017
    https://jumperads.com/how-transfer-furniture-yanbu.html كيفية نقل العفش بينبع
    https://jumperads.com/all-company-transfer-furniture-yanbu.html اهم شركات نقل العفش بينبع
    https://jumperads.com/best-company-transfer-furniture-yanbu.html افضل شركة نقل عفش بينبع
    https://jumperads.com/price-transfer-furniture-medina.html اسعار شركات نقل العفش بالمدينة المنورة
    https://jumperads.com/transfer-furniture-medina-2017.html نقل اثاث بالمدينة المنورة 2017
    https://jumperads.com/how-transfer-furniture-medina.html كيفية نقل العفش بالمدينة المنورة
    https://jumperads.com/all-company-transfer-furniture-medina.html اهم شركات نقل العفش بالمدينة المنورة
    https://jumperads.com/best-company-transfer-furniture-medina.html افضل شركة نقل عفش بالمدينة المنورة
    https://jumperads.com/price-transfer-furniture-riyadh.html اسعار شركات نقل العفش بالرياض
    https://jumperads.com/transfer-furniture-riyadh-2017.html نقل اثاث بالرياض 2017
    https://jumperads.com/how-transfer-furniture-riyadh.html كيفية نقل العفش بالرياض
    https://jumperads.com/all-company-transfer-furniture-riyadh.html اهم شركات نقل العفش بالرياض
    https://jumperads.com/best-company-transfer-furniture-riyadh.html افضل شركة نقل عفش بالرياض

    https://jumperads.com/ نقل الاثاث
    https://jumperads.com/transfer-furniture-riyadh.html شركة نقل عفش بالرياض
    https://jumperads.com/transfer-furniture-jeddah.html شركة نقل عفش بجدة
    https://jumperads.com/transfer-furniture-dammam.html شركة نقل عفش بالدمام
    https://jumperads.com/transfer-furniture-medina-almonawara.html شركة نقل عفش بالمدينة المنورة
    https://jumperads.com/transfer-furniture-taif.html شركة نقل عفش بالطائف
    https://jumperads.com/transfer-furniture-mecca.html شركة نقل عفش بمكة
    https://jumperads.com/transfer-furniture-yanbu.html شركة نقل عفش بينبع
    https://jumperads.com/transfer-furniture-in-najran.html شركة نقل عفش بنجران
    https://jumperads.com/transfer-furniture-in-khamis-mushait.html شركة نقل عفش بخميس مشيط
    https://jumperads.com/transfer-furniture-abha.html شركة نقل عفش بابها
    https://jumperads.com/transfer-furniture-buraydah.html شركة نقل عفش ببريدة
    https://jumperads.com/transfer-furniture-qassim.html شركة نقل عفش بالقصيم
    https://jumperads.com/transfer-furniture-tabuk.html شركة نقل عفش بتبوك
    https://jumperads.com/transfer-furniture-hail.html شركة نقل عفش بحائل
    https://jumperads.com/transfer-furniture-dammam-khobar.html شركة نقل عفش بالخبر
    https://jumperads.com/transfer-furniture-ahsa.html شركة نقل عفش بالاحساء
    https://jumperads.com/transfer-furniture-qatif.html شركة نقل عفش بالقطيف
    https://jumperads.com/transfer-furniture-jubail.html شركة نقل عفش بالجبيل

  • Posted by ِشركة نقل عفش بحائل on

    http://www.domyate.com/2019/08/27/transfer-furniture-north-riyadh/ نقل عفش شمال الرياض
    http://www.domyate.com/2019/09/05/movers-company-khamis-mushait/ شركات نقل عفش بخميس مشيط
    http://www.domyate.com/2019/09/05/10-company-transfer-furniture-khamis-mushait/ شركة نقل العفش بخميس مشيط
    http://www.domyate.com/2019/09/05/all-transfer-furniture-khamis-mushait/ شركات نقل اثاث بخميس مشيط
    http://www.domyate.com/2019/09/05/best-company-transfer-furniture-khamis-mushit/ افضل شركات نقل اثاث بخميس مشيط
    http://www.domyate.com/2019/09/05/company-transfer-furniture-khamis-mushit/ شركات نقل اثاث بخميس مشيط
    http://www.domyate.com/category/%D9%86%D9%82%D9%84-%D8%B9%D9%81%D8%B4-%D8%AC%D8%AF%D8%A9/ نقل عفش جدة
    http://www.domyate.com/2019/09/25/movers-furniture-from-jeddah-to-jordan/ نقل عفش من جدة الي الاردن
    http://www.domyate.com/2019/10/03/price-cleaning-tanks-in-jeddah/ اسعار شركات تنظيف خزانات بجدة
    http://www.domyate.com/2019/09/25/movers-furniture-from-jeddah-to-egypt/ نقل عفش من جدة الي مصر
    http://www.domyate.com/2019/09/24/movers-furniture-from-jeddah-to-lebanon/ نقل عفش من جدة الي لبنان
    http://www.domyate.com/2019/09/22/%d8%a3%d9%86%d8%ac%d8%ad-%d8%b4%d8%b1%d9%83%d8%a7%d8%aa-%d9%86%d9%82%d9%84-%d8%a7%d8%ab%d8%a7%d8%ab-%d8%a8%d8%ac%d8%af%d8%a9/ شركات نقل اثاث بجدة
    http://www.domyate.com/2019/09/22/best-company-movers-jeddah/ افضل شركات نقل اثاث جدة
    http://www.domyate.com/2019/09/22/company-transfer-furniture-yanbu/ شركات نقل العفش بينبع
    http://www.domyate.com/2019/09/21/taif-transfer-furniture-company/ شركة نقل عفش في الطائف
    http://www.domyate.com/2019/09/21/%d8%b4%d8%b1%d9%83%d8%a7%d8%aa-%d9%86%d9%82%d9%84-%d8%a7%d9%84%d8%b9%d9%81%d8%b4/ شركات نقل العفش
    http://www.domyate.com/2019/09/21/%d8%b7%d8%b1%d9%82-%d9%86%d9%82%d9%84-%d8%a7%d9%84%d8%b9%d9%81%d8%b4/ طرق نقل العفش
    http://www.domyate.com/2019/09/20/%d8%ae%d8%b7%d9%88%d8%a7%d8%aa-%d9%86%d9%82%d9%84-%d8%a7%d9%84%d8%b9%d9%81%d8%b4-%d9%88%d8%a7%d9%84%d8%a7%d8%ab%d8%a7%d8%ab/ خطوات نقل العفش والاثاث
    http://www.domyate.com/2019/09/20/best-10-company-transfer-furniture/ افضل 10 شركات نقل عفش
    http://www.domyate.com/2019/09/20/%d9%83%d9%8a%d9%81-%d9%8a%d8%aa%d9%85-%d8%a7%d8%ae%d8%aa%d9%8a%d8%a7%d8%b1-%d8%b4%d8%b1%d9%83%d8%a7%d8%aa-%d9%86%d9%82%d9%84-%d8%a7%d9%84%d8%b9%d9%81%d8%b4-%d9%88%d8%a7%d9%84%d8%a7%d8%ab%d8%a7%d8%ab/ اختيار شركات نقل العفش والاثاث
    http://www.domyate.com/2019/09/20/cleaning-company-house-taif/ شركة تنظيف منازل بالطائف
    http://www.domyate.com/2019/09/20/company-cleaning-home-in-taif/ شركة تنظيف شقق بالطائف
    http://www.domyate.com/2019/09/20/taif-cleaning-company-villas/ شركة تنظيف فلل بالطائف
    http://www.domyate.com/ شركة نقل عفش
    http://www.domyate.com/2017/09/21/%D9%86%D9%82%D9%84-%D8%A7%D9%84%D8%B9%D9%81%D8%B4-%D9%88%D8%A7%D9%84%D8%AA%D8%AE%D8%B2%D9%8A%D9%86/ نقل العفش والتخزين
    http://www.domyate.com/2016/07/02/transfer-furniture-dammam شركة نقل عفش بالدمام
    http://www.domyate.com/2015/11/12/%D8%B4%D8%B1%D9%83%D8%A9-%D9%86%D9%82%D9%84-%D8%B9%D9%81%D8%B4-%D8%A8%D8%A7%D9%84%D9%85%D8%AF%D9%8A%D9%86%D8%A9-%D8%A7%D9%84%D9%85%D9%86%D9%88%D8%B1%D8%A9/ شركة نقل عفش بالمدينة المنورة
    http://www.domyate.com/2016/06/05/transfer-furniture-jeddah/ شركة نقل عفش بجدة
    http://www.domyate.com/2017/08/10/movers-company-mecca-naql/ شركات نقل العفش بمكة
    http://www.domyate.com/2016/06/05/transfer-furniture-mecca/ شركة نقل عفش بمكة
    http://www.domyate.com/2016/06/05/transfer-furniture-taif/ شركة نقل عفش بالطائف
    http://www.domyate.com/2016/06/05/transfer-furniture-riyadh/ شركة نقل عفش بالرياض
    http://www.domyate.com/2016/06/05/transfer-furniture-yanbu/ شركة نقل عفش بينبع
    http://www.domyate.com/category/%D8%AE%D8%AF%D9%85%D8%A7%D8%AA-%D9%86%D9%82%D9%84-%D8%A7%D9%84%D8%B9%D9%81%D8%B4-%D9%88%D8%A7%D9%84%D8%AA%D8%AE%D8%B2%D9%8A%D9%86/ نقل العفش والتخزين
    http://www.domyate.com/2015/08/30/furniture-transport-company-in-almadinah/ شركة نقل عفش بالمدينة المنورة
    http://www.domyate.com/2016/06/05/transfer-furniture-medina-almonawara/ شركة نقل عفش بالمدينة المنورة
    http://www.domyate.com/2018/10/13/%D9%86%D9%82%D9%84-%D8%B9%D9%81%D8%B4-%D8%AC%D8%AF%D8%A9-%D8%B4%D8%B1%D9%83%D8%A7%D8%AA-%D9%86%D9%82%D9%84-%D9%85%D9%85%D9%8A%D8%B2%D8%A9/ نقل عفش بجدة
    http://www.domyate.com/2016/07/22/%d8%a7%d8%b1%d8%ae%d8%b5-%d8%b4%d8%b1%d9%83%d8%a9-%d9%86%d9%82%d9%84-%d8%b9%d9%81%d8%b4-%d8%a8%d8%a7%d9%84%d9%85%d8%af%d9%8a%d9%86%d8%a9-%d8%a7%d9%84%d9%85%d9%86%d9%88%d8%b1%d8%a9/ ارخص شركة نقل عفش بالمدينة المنورة
    http://www.domyate.com/2016/07/25/%D8%B4%D8%B1%D9%83%D8%A9-%D9%86%D9%82%D9%84-%D8%B9%D9%81%D8%B4-%D8%A8%D8%A7%D9%84%D9%82%D8%B5%D9%8A%D9%85/ شركة نقل عفش بالقصيم
    http://www.domyate.com/2016/07/25/%D8%B4%D8%B1%D9%83%D8%A9-%D9%86%D9%82%D9%84-%D8%B9%D9%81%D8%B4-%D8%A8%D8%AE%D9%85%D9%8A%D8%B3-%D9%85%D8%B4%D9%8A%D8%B7/ شركة نقل عفش بخميس مشيط
    http://www.domyate.com/2016/07/25/%D8%B4%D8%B1%D9%83%D8%A9-%D9%86%D9%82%D9%84-%D8%B9%D9%81%D8%B4-%D8%A8%D8%A7%D8%A8%D9%87%D8%A7/ شركة نقل عفش بابها
    http://www.domyate.com/2016/07/23/%D8%B4%D8%B1%D9%83%D8%A9-%D9%86%D9%82%D9%84-%D8%B9%D9%81%D8%B4-%D8%A8%D8%AA%D8%A8%D9%88%D9%83/ شركة نقل عفش بتبوك

  • Posted by ِشركة نقل عفش بحائل on

    http://fullservicelavoro.com/ شركة ريلاكس لنقل العفش والاثاث
    http://fullservicelavoro.com/2019/01/07/transfer-movers-taif-furniture/ شركة نقل عفش بالطائف
    http://fullservicelavoro.com/2019/01/08/transfer-movers-riyadh-furniture/ شركة نقل عفش بالرياض
    http://fullservicelavoro.com/2019/01/08/transfer-movers-jeddah-furniture/ شركة نقل عفش بجدة
    http://fullservicelavoro.com/2019/01/01/transfer-and-movers-furniture-mecca/ شركة نقل عفش بمكة
    http://fullservicelavoro.com/2019/01/07/transfer-movers-madina-furniture/ شركة نقل عفش بالمدينة المنورة
    http://fullservicelavoro.com/2019/01/07/transfer-movers-khamis-mushait-furniture/ شركة نقل عفش بخميس مشيط
    http://fullservicelavoro.com/2019/01/09/transfer-movers-abha-furniture/ شركة نقل اثاث بابها
    http://fullservicelavoro.com/2019/01/07/transfer-movers-najran-furniture/ شركة نقل عفش بنجران
    http://fullservicelavoro.com/2019/01/16/transfer-movers-hail-furniture/ ِشركة نقل عفش بحائل
    http://fullservicelavoro.com/2019/01/16/transfer-movers-qassim-furniture/ شركة نقل عفش بالقصيم
    http://fullservicelavoro.com/2019/02/02/transfer-movers-furniture-in-bahaa/ شركة نقل عفش بالباحة
    http://fullservicelavoro.com/2019/01/13/transfer-movers-yanbu-furniture/ شركة نقل عفش بينبع
    http://fullservicelavoro.com/2019/01/18/%d8%af%d9%8a%d9%86%d8%a7-%d9%86%d9%82%d9%84-%d8%b9%d9%81%d8%b4-%d8%a8%d8%a7%d8%a8%d9%87%d8%a7/ دينا نقل عفش بابها
    http://fullservicelavoro.com/2019/01/13/%D9%86%D9%82%D9%84-%D8%A7%D9%84%D8%A7%D8%AB%D8%A7%D8%AB-%D8%A8%D8%A7%D9%84%D9%85%D8%AF%D9%8A%D9%86%D8%A9-%D8%A7%D9%84%D9%85%D9%86%D9%88%D8%B1%D8%A9-%D8%A7%D9%87%D9%85-%D8%B4%D8%B1%D9%83%D8%A7%D8%AA/ نقل الاثاث بالمدينة المنورة
    http://fullservicelavoro.com/2019/01/12/%D8%A7%D8%B1%D8%AE%D8%B5-%D8%B4%D8%B1%D9%83%D8%A9-%D9%86%D9%82%D9%84-%D8%B9%D9%81%D8%B4-%D8%A8%D9%85%D9%83%D8%A9/ ارخص شركة نقل عفش بمكة
    http://fullservicelavoro.com/2019/01/07/transfer-movers-elkharj-furniture/ شركة نقل عفش بالخرج
    http://fullservicelavoro.com/2019/01/07/transfer-movers-baqaa-furniture/ شركة نقل عفش بالبقعاء
    http://fullservicelavoro.com/2019/02/05/transfer-furniture-in-jazan/ شركة نقل عفش بجازان

Leave a comment