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How you can find support for your genetic condition or that of a loved one. View Post -
I turned 30 at the beginning of the month and I wanted to share why reaching this milestone means so much to a person living with a rare condition, like me. View Post -
For the last month, I have been up and down New York City, from Chinatown to Union Square, trying to figure out what I have. I never thought I would end up having to go to a vascular neurologists. View Post
