Our Partnership with Global Genes

In the quest for which organization it made sense for us to partner with, the list was long. Believe it or not, our Resort 2020 collection covers over 25 different diagnoses. While the Anna one piece is inspired by Anna’s journey with Acne Inversa and thus has raglan sleeves to avoid chafing in the armpits, we also received ample requests from burn survivors and women living with psoriasis and eczema alike, to make a sun protective yet sexy rashguard.

Each one of the diagnoses we covered in our collection has between 1 to 5 organizations that represent them in the US. When I started contacting some of these organizations, the reaction I got was quite unexpected. Usually when I have contacted organizations like these in the past, like for example the Burns Center at New York Presbyterian, the response is very encouraging. This organization and Changing Faces UK, whom we have worked with in the past as well, understand that a healing journey can be multifaceted and what works for one person, might not work for the next one. Both of these organizations were receptive to the idea of MIGA Swimwear, the idea that garments designed with the direct input of people living with visible differences, disabilities and chronic illnesses can empower them to share their story, lowering stigma and raising awareness and understanding towards these communities. 

As I called these organizations, I kept getting very discouraging answers. Some organizations would not partner with us unless we donated $10,000 right from the bat. As a small business owner, we do not have this kind of liquidity and would think twice about putting that amount of money towards an organization that prioritizes their funding over the quality of life they can provide to the people they seek to support. I understand that funding is important for research, but I would also like to see some of these organizations focus on small actionable steps that could make a difference today in the lives’ of their members.

Discouraged by these conversations, I asked my friend Sarah Kim, writer and journalist, for ideas on organizations we could partner with. Enter Global Genes. Global Genes is a leading international rare patient advocacy organization that has reached over 6 million patients and advocates, providing support and raising awareness about the experience of having a rare condition. Their work stands out to me compared to other organizations, because of their RARE Compassion Project, a program that matches eligible medical students with a rare disease patient or family, giving them an opportunity to learn firsthand about diagnosis as well as the unique challenges faced by patients every day and connect with the rare disease community. As a person with a rare disease who in every doctor appointment ends up having to always educate my doctors, this particularly moved me and our brand to partner with them. Hence we will be donating 3% of net revenue of all sales done between September 15-25th to Global Genes, during their Global Genes LIVE! A RARE Patient Advocacy (un)Summit. I will also be speaking on September 25th on "The Power of Human Connections and Resilient Communities," you can sign up here!

Comments

  • Posted by impergo on

    dove acquistare levitra sicuro

  • Posted by 우리카지노계열사 https://gamja888.com 플레이슬롯 on

    https://instagrme.live/ – 바카라사이트,카지노사이트,온라인바카라,온라인카지노,카지노검증사이트
    https://instagrme.live/ – 안전카지노
    https://instagrme.live/ – 카지노추천
    https://instagrme.live/ – 실시간카지노
    https://instagrme.live/ – 비바카지노
    https://instagrme.live/ – 카지노주소
    https://instagrme.live/ – 인터넷카지노
    https://instagrme.live/ – 라이브카지노
    https://instagrme.live/ – 바카라게임
    https://instagrme.live/ – 퀸즈슬롯
    https://instagrme.live/온라인카지노롤링/
    https://instagrme.live/우리카지노-쿠폰/
    https://instagrme.live/아바타배팅-전화배팅/
    https://instagrme.live/온라인-슬롯머신게임/
    https://instagrme.live/우리카지노-sa게임/
    https://instagrme.live/블랙잭-게임하는법/
    https://instagrme.live/에볼루션카지노/
    https://instagrme.live/바카라-게임하는법/
    https://instagrme.live/호게임/
    https://instagrme.live/카지노양방/
    https://instagrme.live/카지노총판/
    https://instagrme.live/맥스카지노/
    https://instagrme.live/밀리언클럽카지노/
    https://instagrme.live/로얄카지노/
    https://instagrme.live/카심바코리아-슬롯카지노/
    https://instagrme.live/카지노사이트/

    youube.me
    gamja888.com
    instagrme.com
    youubbe.me
    Instagrm.me
    Instagrme.net
    instagrme.site
    naverom.me
    facebookom.me

  • Posted by 카심바카지노 https://instagrme.live 바카라검증사이트 on

    ぴぬげすぜいざやれゅ 카심바카지노 https://instagrme.live 바카라검증사이트 솔카지노 솔카지노 바카라게임사이트 카지노하는곳 바카라하는곳 카지노검증사이트 더킹카지노먹튀 모바일카지노 카지노게임사이트 카지노사이트 클락카지노 https://instagrme.live 스피드바카라 sm카지노 더나인카지노먹튀 카심바슬롯 카심바슬롯 월드카지노 식보게임 온라인바카라 카지노사이트 온라인도박사이트 맥스카지노주소 카심바슬롯 강원랜드다이사이 슬롯머신추천 솔레어카지노 온라인바카라 바카라사이트 슬롯카지노카지노사이트 슬롯나라 온라인블랙잭 온라인바카라 엔젤카지노 온라인카지노 에그벳슬롯 코인카지노 룰렛게임 바카라사이트 https://instagrme.live 카심바슬롯 실시간바카라사이트 바카라사이트 포텐슬롯사이트 카심바코리아 실시간카지노 필리핀아바타 우리카지노먹튀 바카라사이트 F1카지노 바카라게임사이트 바카라보는곳 온라인바카라사이트 카지노쿠폰 카심바슬롯 온라인바카라 카지노룰렛 바카라사이트 리조트월드카지노 온라인룰렛 슬롯머신777 퍼스트카지노 포텐슬롯주소 식보게임사이트 빅카지노 밀리언카지노 제왕카지노 카심바슬롯 포텐슬롯사이트 https://instagrme.live 카심바슬롯 카지노사이트 온라인슬롯사이트 솔카지노 인터넷바카라 포텐슬롯주소 더킹카지노먹튀 오공슬롯먹튀 바카라사이트주소 바카라사이트 안전카지노 빅카지노 포텐슬롯 https://instagrme.live 온라인카지노 바카라규칙 에그벳슬롯 포텐슬롯사이트 온라인도박사이트 온라인슬롯사이트 포텐슬롯주소 트럼프카지노먹튀 온라인바카라사이트 바카라분석법 mongoangulam998 리조트월드카지노 바카라 더킹카지노먹튀비바카지노주소 애플카지노 바카라잘하는법우리카지노 바카라검증사이트 우리카지노먹튀 바카라사이트추천 제왕카지노 강원랜드다이사이 맥스카지노 포텐슬롯사이트 온라인바카라 mongoangulam998 온라인슬롯머신게임 식보게임주소 바카라사이트 카심바카지노 https://instagrme.live 바카라검증사이트 우리카지노계열 오공슬롯 포텐슬롯 엠카지노 안전카지노 바카라사이트 카지노검증사이트 생중계카지노 비바카지노주소 온라인슬롯사이트 코인카지노 블랙잭사이트 온라인룰렛 카심바주소 바카라사이트추천 mongoangulam998 헤븐카지노 카심바카지노 https://instagrme.live 바카라검증사이트 카심바슬롯 생활바카라 코인카지노 바카라사이트추천 헤븐카지노 메가슬롯 타이산게이밍 *0R 카심바주소 다이사이게임 바카라분석법 ぱちぜぜつ 온라인바카라 ょぶぼすいげばぼずゐ

Leave a comment