Stories of Resilience

genetic condition

  • genetic condition support

    Genetic Condition Support

    How you can find support for your genetic condition or that of a loved one. View Post
  • MariaLuisa blowing her candles

    Made it to 30

    I turned 30 at the beginning of the month and I wanted to share why reaching this milestone means so much to a person living with a rare condition, like me.  View Post